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The One and Only Natasha

I'm a native Texan and am married to the best man in the world. I'm currently a stay at home wife, with a passion for cooking, photography, teaching ESL, my dog (Kiwi) and kitty (Elvis), and coffee. I suffer from RSD/CRPS and take one day at a time. I try my best to find the funny things in life!

Take that RSD / CRPS! I own today and you do not own me! :D

project3x5 Asks:

So happy to have read about the new doctor! God is so good, isn't he? Having a sense of hope is so wonderful and I have no doubt that your journey will go uphill from here. Also, thank you for sharing the gate analogy. I'm going through the SCS trial at the moment, so every little bit of information helps. I've gone through a few rounds of ketamine so if there's anything I can help with, please let me know. Hope you have a good week! Lots of love, Danielle xx

mrsnatalieeremin Said:

Danielle :)) God is so very good! I wish you a very speedy recovery from your SCS implant! Please let me know how it goes. :D It’s a nifty feeling to be bionic! ;) I really hope that it works for you. You will be in my prayers. Thank you for being such a positive source of help. I have moved to Austin, Texas and am seeing two new doctors next week. I will let you know what they recommend! :)) Hugs and love, Natasha

Kiwi ♥

New Doctor

Leap day brought new opportunity into my world! :)

I saw a new doctor for my RSD/CRPS pain. She was very positive and helped bring back hope in my life that I will dominate this disease. Unfortunately, I am now on two medicines but neither are painkillers, so I am okay with it. She made sure that the medicines wouldn’t make me feel like a zombie! :) During our visit, she discussed different types of options to help with my pain that my other doctors had ignored. Even maybe trying Ketamine Infusion Therapy. She did answer the one question that all of my other doctors have been avoiding like the plague: why isn’t SCS helping with the pain flares at night and why is my RSD/CRPS progressing? She said that in rare cases the SCS doesn’t help everyone, even if the trial is successful. Our nerves can be fickle. She used an analogy with our nerves being a gate, pain signals are bad people, and stimulator signals are good people. In this analogy the people are all trying to get through the gate at the same time. In a perfect world, only the good people (stimulator signals) would be able get through the gate, blocking the bad people. But in an RSD world, bad people (pain signals) are also able to get through the gate. So you can have stimulator and pain! :/ Well, she said it more professional then that, but you get the point. At least she was honest and gave me a straightforward answer, unlike my other doctors who have been beating around the bush.

The only downer of the appointment is that she thinks my RSD/CRPS is spreading into my left leg. She is ordering a CT scan to see if it is spreading. :/ I am going to stay positive, pray that isn’t spreading, and have the CT scan done. After she receives the results back from the CT scan, we will decide what option will be best for me and proceed from there.

That being said, I promise to keep everyone updated. I’m super excited to have a new doctor who is super caring and doesn’t just treat me like a number. :)

On another positive note, my birthday is on Saturday! :D

* Bongo Solo * - Sheldon

jacklynnnnnnn Asks:

I love how positive you are about RSD I also have it I'm in remission right now though :)

mrsnatalieeremin Said:

Thank you so much! :) Your comment totally made day. I am very happy to hear that your RSD is in remission! That is wonderful! :D If you don’t mind me asking, how long did it take for your RSD to go into remission? I hope you are having a wonderful week.

It’s Ash Wednesday! :) My husband and I are both giving up sweets for lent. Really looking forward to going to church tonight.

I don’t want medication, just a solution to why my SCS stopped giving me pain relief and what to do next. I’m tired of my doctors treating me like a number.

Totally made my day! :)

Anonymous Asks:

Hi Natasha, I was just wondering if you got your stimulator working again? My daughter is scheduled to have her trial done on the 21st. We've heard from other people that theirs stopped working as well so we are a bit apprehensive. I really do hope that it has worked for you. Deb

mrsnatalieeremin Said:

Hi Deb! :) I can totally understand. I am getting my stimulator reprogrammed again tomorrow and can let you know the results. I had it reprogrammed two weeks ago with no relief. I’m positive and am hoping that tomorrow will help. :) I need to start getting some sleep so gotta hang on to some hope. Will keep your family in my prayers. Please keep me updated on your situation.